Brooding
Sunday, March 30th, 2008Today is the 4th anniversary of my mom’s death. She had lived with me exactly 4 yrs. at the time she died. I brought her down from Pa. when A. was in second grade and she died when A. was in 6th. She had been getting progressively less able to cope with daily life and had just had a procedure to clear a blockage in her carotid. At first, she was able to do dishes and help a bit around the house and go places with us but slowly became less and less mobile. I promised to keep her house and take her home for a bit every summer which I was able to do; although as the years went on, it became more and more complicated to get her there. I was only able to have her live with me because of her dementia; when she was herself, we always were cats and dogs. Her dementia made her vague and easy going; a one eighty from what she’d been like all my life. It made possible our living arrangement but broke my heart at the same time; kind of like living with an imposter. In Dec. before she died, I noticed, after doing her shower, when I was drying her feet, a couple tiny open areas on her toes on one foot. Now, she was diabetic and had previously had small open areas on her heels before which healed readily with treatment. Somehow, these seemed different—for one thing (and you are probably going to think I’m nuts), the dog was fascinated with the smell or something and I had all I could do to keep her away. Took her to her dr. four times in two and a half weeks; I knew something was different. He refused to do a culture. The third visit he finally put her on an antibiotic, the fourth agreed to a consult with a vascular surgeon but gave us an appt. almost a month away. VERY patronizing attitude by the third visit. He’d “seen worse and he was looking at it from the view of a professional while I was looking at it as a family member”, etc. I then made an appt. with her podiatrist, who, horrified, got her in at the surgeon the next day and she was admitted to the hosp. from his office. In a day or two, an operation was done to remove plaque from a vessel in the groin area. The hospital stay itself was a nightmare; some staff were lovely and competent but the bad ones are the ones you remember, unfortunately. At one point a catheter was put in for retention and such a huge amt of urine removed at once so fast that she was sent into shock. If I didn’t feed her, she went hungry, when she had chest pain one evening the assigned R.N. actually said she “didn’t have time for this”, it took me about a week to get a bedside commode placed by her bed (I think it was the day before discharge), before surg., I asked for help getting her to the room’s bathroom and the aide told her to “just go in the bed”. About a week after the surg, she was moved to a rehab place which was a thousand times worse—almost daily medication errors (including a antibiotic being given three times a day instead of once, incorrect inhalation meds). I don’t think she ever got a meal tray that didn’t have sugar on it and the first thing they would do was to put the sugar in the tea and hand her the cup no matter how many times I reminded them. I would walk in at lunch to feed her and she’d be blankly holding the cup with sugar in the bottom if I didn’t get there early enough. I just about lived in the director of nursing’s office for all the good it did—none. One day I arrived to find her bed in high position, sides down, and the aide down the hall looking for linen. Nightmare doesn’t even begin to describe those weeks. I also learned, at the rehab place, something the surgeon never told me, those open areas on her foot had been gangrene. They amputated a toe. She got C-diff and pneumonia and MRSA. I took her home to die where I could make sure she got better care until the end. Maintained isolation as best I could in my home and did it all 24/7. I can’t begin to dredge up all the horrors here that were inflicted upon her at the hands of our medical community; this was only the tip of the iceburg, I’d be writing for hours. I thought about suing, but the truth is, no one cares if a demented old woman dies and the thought of talking about all this when it was so fresh was just too much; I was completely and totally exhausted and barely hanging on by my fingernails to what little sanity I had left.
What is the lesson here, chickadees? It’s bleak and getting worse on the medical front. All I can say is — God help us all.
Sorry for such a downer but it (at least some of it) needed to come out.