Mixed emotions
Today is the official anniversary of the day my son had his bad seizure and although it’s not a good memory I’m not having as much trouble w/it as I did on Monday. It has been a rough year but I’m so glad we had him with us to create more memories. Maybe it’s just that I’m busier than I was on Monday but I feel that I’m dealing better with everything than I did over the weekend.
I titled this mixed emotions b/c on top of dealing w/the memories of last year we’re getting Kyle’s new wheelchair today. It will definitely make things easier but it takes away one more way that I can deny that my son is different from most kids and that we’ll lose him one day. Even though he’s nearly 2 1/2, it still feels like we just have an infant b/c he does all of the normal baby things. But since he’s becoming too big to carry everywhere, having to strap him into his wheelchair reminds me that he’s not a baby anymore but a child who should be walking, talking, working on potty training, etc. A good friend of mine has a daughter who is exactly 2 weeks younger than him and even though I like hearing stories about what she’s doing it’s hard b/c it reminds me of what Kyle isn’t doing. ***And just as a side note, I’m not normally this morose and focusing on what he can’t do, I’m just dealing w/ emotions today.
On the exercise front, I did do my 10 minutes of Pilates this morning but I’m not going to be able to go to the gym. The appt. for his wheelchair had to be at 2:30 and I go to the gym at that time. I feel it’s more important for me to be at his appt. than workout today.
Today is full of meetings at school so I had better get my butt moving.
Im sorry your dealing with such strong memories. Reading the blog from that day a year ago, It just really makes me feel for your family. Stay Strong, it looks like you have been!
Oh sweetie, I am so sorry that you are having a rough day. I can connect with your emotions on this a little. We have 4 sons. Three by adoption and one homemade. My two oldest (19 & 16) are very high function MR. My 9 year old has pretty severe allergies and asthma, my youngest might have Apraxia (type of speech delay- he cannot talk at 2 except a few minor words ). Sooooo long story long LOL sorry
I kind of know what you feel. You love your child dearly, feel bad for what they have to experience that is painful or limits them. It is okay to not be miss susie sunshine all of the time. You are entitled to your emotions. Your son is so blessed to have such a wonderful mommy! Another thing most dont realize that i do “we” as mom’s to these wonderful, special sweet children are blessed to call them ours.
sorry I went on and on
take care
Joy
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