Up late again

I’m very worried.  Our youngest son has a terminal brain disease and one of the side effects is that he has trouble sleeping.  During the earlier part of this year there was a stretch where we got about 2 hours of sleep a night and that was with sleeping medication.  As the months went on he slept a bit more (4-5) hours, but once summer hit and I was out of school he miraculously started sleeping 8-10 hours a night WITHOUT MEDICINE!!  The main difference was that he was eating throughout the day instead of only eating after I pick him up after school.  For some reason that none of the doctors can figure out, he will only eat for me or my mother.  He would literally go the entire day without eating and then eat an entire days worth of food from about 4-10 pm.  I’m sure that gave him a tummyache which possibly led to his inability to sleep.

But 3 nights this week he has gotten up or gone to bed very late.  I’m feeling like we’re going back to those days when he wasn’t sleeping.  I know it’s not nearly as bad as it was then but school is starting in less than 2 weeks and I’m afraid that we’re going to slip into those bad days again.  Staying home for me is not an option because my husband was laid off from his job a while back and is now in school to finish his teaching degree so I am our sole source of income as well as the provider of our health insurance.  And the feeding shouldn’t be an issue anymore because over the summer he had surgery to insert a feeding tube so that others can feed him while I’m teaching or (gasp) just leave the house for more than an hour.

I know this isn’t diet related but I needed an area to express my concerns.  It’s now 3:13 am and he has been up for an hour and is now finally starting to act fussy which means there is a chance he will fall asleep.  I’m hoping that he goes to bed soon because we have family pictures tomorrow and both he and I need to be rested.

Otherwise the diet is still going well.  I overdid it on the low-carb products and had a funky tummy earlier.  I don’t think I’m going to be able to exercise today but I will make sure to get it in on Sunday.

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